Look at me ma, I'm meditating!

Maroochydore Bushland Park

I was invited recently to a Meditation Retreat.  It was a whole day event.  I was really looking forward to it, as I had never been to one before and had no idea what to expect. The only hope was that "please please don't say we can't talk for the entire day!"  That would really be a challenge for me! 

It turned out to be an awesome day, it was a small group but I must say Chad Foreman  from  The Way of Meditation , who ran this meditation retreat was so good.  He clearly explained what and why and how and answered all the questions gently and believe me there were a lot of questions!  There were varying levels from beginners to seasoned meditation practitioners . Some had their own paraphernalia and others like me just rocked in with a water bottle and a coffee in hand! (I am always prepared!)  But when you get down to the basics, all you need is to "be there." (know what I mean)

Meditation Hall looking out to the rainforest

I have really come a long way in terms of meditation. I practice almost everyday.  I also try to attend a monthly group my SIL runs. I chat about different types of meditation with various friends who also have their favourites (I feel it also deepens our connection).  It's been an enlightening journey.

A few years back there would have been little possibility of me participating in such an event.   I would have fidgeted, fretted, wondered about my phone calls and messages, my thoughts would have been all over the place and I probably would have been internally grumbling about a numb bum!  I would have been self conscious, I would have wondered what others thought of me,  I would be judgmental in my perception of the others there.  I had left the house changing my blouse at the last minute as it was so hot and realised there was a small hole in it, the now Dx just looked at it and went "oh well", the Dx before would have panicked, run back, rummaged around for another blouse, probably making herself late, then feeling rushed and ... well you can see how that goes.

But perspectives change, after having cancer, after re shifting my priorities in life, it set me on a path to truly find myself, who I am now, what I'm really about. In the beginning it was a bit of self blame as to why I had cancer, what caused it, what was I doing in my life that brought me to such a devastating full stop.   I surprisingly found that I wanted to be more spiritual, that meditation had become easier for me, that being in tune with my inner self was no hardship.  I'm calmer, my anxiety has gone from a  10 to a subdued 2.  I'm hoping to bring that further down as well. 

I was asked to do a series of photos with my family fo the Hand, Heart , Pocket foundation who contributed a huge ammount of money to Bloomhill. 

I do not poo pooh (that is an actual word, it is!) practitioners of different spiritual healing.  I've actually embraced them, and experienced them for myself.  I understand the high stress I was living in was a huge factor in getting the dis-ease. I absolutely thank my psychologist for helping me with that.    Though my diet was not particularly bad (no no mcd's once a week was OK.. right.. LOL) I am more aware of what I'm putting into my body.  During cancer my body just reacted so badly to meat so now days I have a more pescatarian diet, however as my daughter is a Vegan, I've had to really push my creative cooking boundaries to incorporate meals that we can all eat and are nutritious and delicious. 

Vegetarian Food Spread

The one thing no one tells you about or discusses with you after having Cancer is "then what?" How do you get on with your life.  How do you alleviate your fears of every single lump, bump, ache that it's not the dreaded cancer reemerging?  How do you normalise your everyday living, what is normal now?  A lot of of survivors take a while to be able to physically get back to some level of fitness, the average length I think is two years.   To make friends again or to help your friends understand who you are now without too much damage to your relationships.    The answer is one day at a time,  to treat yourself with love and kindness, to understand your limitations.  For example I broke down in tears that I couldn't finish the final heat on the dragon boat races, my lungs and heart just couldn't cope and I could feel it.  In the beginning I was really upset with myself and my body which I felt had let me down but then I realised, hey a year ago I was lying in a hospital bed, bald, with tubes going in and out of my arms and back, hardly able to walk up  the stairs and now I'm upset because I couldn't complete the 3rd race of a 500 m sprint in a dragon boat?  My body is what brought me through all this, it has nourished me, it has kept me alive, it has held me up.  I am so grateful for what it has endured and how it continues to function.

more than a year after Cancer

I've also learned to love me.  And so I gave myself a gift.  I bought myself a road bike.  I don't push too hard, I slowly increase my time and distance and when I feel I can't and don't want to ride, I honour it and do a session of yoga instead.  That is life, it has a series of choices, all of them to make you live it to your full capacity.  (Just don't 'ask Annie how many times I've asked her to lend me her bike pump!!)

 I try to live every day in the present,  sometimes I forget, I start stressing about the usual thing, bills, medical,.. things! then I have to gather myself, do a small meditation of "Gladitude",   https://youtu.be/8dcxLHXyuAU  or call my daughter or chat with my son.  I pick myself up and start again.  You can too.

Begin again

It's been a mixed bag this week, I came back from Brizzie after being invited to go see a show there , had a tremendous time with the "godmother".  She booked me in for an awesome massage, ahhhh it was sooo good, I could go on for ages but then you'd have massage envy and give up reading !

We also went for a yoga class that she does weekly and I was pleasantly surprised as it was Iyengar Yoga and a discipline I was used to, even more surprising was the muscle memory of my body.  Ok don't get me wrong, I still do yoga at home, and follow some of the Yogis online and do between 20 to 30 mins every other day, so I can still groan, bend over and touch my toes  anddddd breathe at the same time! taa daa!  But Iyengar is a stricter discipline and I love all the muscle trembling moments of it, (No not masochistic) it makes me feel alive

the Catherine Tate Show at the QPAC

Which brings me to this, oh oh I can see you all holding your breaths, chill out , I"m fine, I'm still in remission and plan to be for a LOOOooooooonnngggggg time.

I had gone in recently for my regular oncology check up with a quick nip up to the vampire uh I mean hematology nurse for my blood test, this one was quite funny, she said my vein kept running away from the needle, so after a few attempts we moved to the other arm, where the vein there decided to play possum and give it up. 

Ok well minus the black plastic nurse outfit...

Aneeee how, after my chit chat with my long suffering Oncologist ,whom lets face it I've bullied, been sarky to, teased, made jokes about but is still smiling when he sees me, says "right everything is good, levels are normal for you (notice for ME) and I've got something here for you to read and go over.  It's a preventative chemo treatment called POMM" (ha ha ha ha.. stop it) " it's very low doses of chemo in a pill".

 Now in my mind I'm thinking , me and my big mouth, why did I ask him what symptoms to look out for should I be concerned about the cancer coming back,( note to self, kick your bum when you get home) thus he's pulling out the stops and we're talking chemo again.. (cue screeching to a halt sound)

So I ask my usual questions, what does it do, what are the side effects, how long will it be for... two years.. wait what?  TWO YEARS.???.. are you kidding me?  er no and there is that dreaded vincristine drip involved on a monthly basis.  I look at my doc and think, this is not the type of Christmas prezzie I was expecting dude.

This was all before I went to Brizzie so put it out of my mind until I returned and read through the bumpf... wronggg.. should have stayed ignorant of it all.. however the one thing that stood out was wha they called the median of survival for lymphoma which was 5 years.  So when he called me I said, "so are you saying I've got a possible 5 years only to live?! " He say "no not at all, it's just a general median, not based on individuals but on a group"

Now see, those sort of things do play on your mind, and with that I went in to the cancer centre as usual for my weekly get together and to speak to my Nurse there about the proposed treatment.

My Youngest Son and Daughter, at his formal.

There are a few things ....ok ok lets get a wee bit serious ok, pull up a chair and lean forward) . there are a few things I want to be clear about, I have spoken to my kids, they support me in what ever decision I make, and they know I've always said, I want quality of life as opposed to quantity of life. If for example the 5 year mark is the yard stick then I'm doing exactly what I've planned to do, that is to live life now, in this moment, with joy and gratitude in my heart, to know that I will put everything in place first as a consideration to my children (i.e. will, funeral arrangements, my own little collage of pics and music ala love actually heh heh a nutter even beyond the grave) because and I say this with all honesty, death is something we all face, weather it's now, later on in life, tomorrow, one thing is for certain, it's not something we can decide or plan.  It happens.  How it happens as well is truly out of our hands.  If you understand that there is nothing to fear from death, that it's just another journey.  The emotions you feel are due to you leaving loved ones behind, but if you are open and honest and prepare them, then death should be something celebrated, because it was a good life, it was a meaningful life, filled with the entire mixed bag of emotions, experiences and to have had the privilege of living it  and understanding why we are here.

Being a cancer survivor does not define me. in essence I am who I am with another new facet.

 So don't put off tomorrow what you can do now, today, go on that holiday you've planned for for ever, chat up that guy or girl you've always wanted to, dance naked under stars at night (but for god's sake don't let you kids catch you or they'll be scarred for life!) read all the books you want, compete in all the races or competitions you've said you wanted to do, latin dance classes, skydiving, just do it and have no regrets.  Breathe!

 I'll say this I am luckier than most, for that I am eternally grateful.  Stop blubbing, grab a tissue, I'm still here la!
with love and gratitude
Dx