|Food and Kids... the game changer|
The day arrives when I go in, Annie is driving me in and holding my hand. My Doc is Dr Rich. Hes asking me what I know so far. So I told him that I supposedly have a mass on my lung that was fairly large and that it was suspected Lymphoma.
He said " Yes you do have Lymphoma. " I swallow. "in fact the mass on your lung which is a very aggressive form of tumor and rare is currently being viewed in Brisbane to determine weather it's lymphoblastic. If it is we will have to begin with a very aggressive form of chemotherapy called HYPER CVAD. Do you have any questions?
Yes at what stage is my Lymphoma.? I ask nervously (c'mon we're all curious!) .
He says " it's stage 2, from the CT scans and PET scans it's just localised to the lymph nodes around the lung area only. Phew that is at least good. then he says," however I do want to do a bone marrow biopsy."
I asked him"why?'
he said "for the possibility that it might have spread to the bones or more for prevention purposes." I asked him "why now as the other times they said they wouldn't do it because of the fluid in my lungs.. "
He said "we'll be really careful and give you loads of local anesthetic to lessen the pain".
For some reason I'm totally against it. I mean OK we're talking about chemo , we're waiting to see the classification of the tumor and now this?"When do you want this by?"
He says" I can get you on Thursday. By then we'll also have the results from Brisbane. "
"Can I think about it,?
He says "yes, I am not forcing you to do this, I don't want you in any pain , think about it and call me later to let me know if you're ok with it", and writes is number down for me to call by the afternoon".
Annie and I go for a coffee, she asks me why I don't want to do it,
I said " I just feel that it's really not necessary at this moment in time, it's not going to make any difference to the treatment they're giving me".
Annie says "ok my friend it's you're choice and I'll back you but if I were you I'd do it and that's all I want to say.""
I called the doctor and told him that I just didn't want to do it, so he said "ok, come in on Thursday for blood tests and results."
I go in to the clinic on Thursday and yes it is confirmed that I have stage 2 non Hodgkin's lymphoma tcell lymphoblastic tumour. Dr Rich wants me in on Friday for final check up and bloods and I'm in hospital next week. I asked if I could wait to go to hospital, it 's all so fast. He said "no Daphne, we need to get in there and get rid of this mass , you're not going to be able to travel and will have to stay put for a while". So in a flurry he starts to write down letters to all parties on my behalf. So competent, and pushy but I understand why he's so adamant.
|waiting for my blood tests|
Yeah this is it and I can't mess around, I want to be around for my Kids Graduation from university, may be kiss a grand child or two, finish my bucket list of travel destinations and get one more show off the ground. Suck it up Daph, you can do this, after all you've been through more in your life, including watching your husband die in your arms, so get the warrior goddess in you to the fore and tame the beast.
I see my doctor again we talk about the protocol I will be going through, the side effects, how many cycles and tolerance levels.
I look at Dr Rich and say, "but Doc, how am to pay for all of this? My Insurance from AIG have refused to honour the payment, I don't have medicare , and I can't work now " He says' look we've been in touch with Admin and we know what's going on but the most important thing here is we get you treated first, with regards to the hospital bills, we'll sort it out later and also get your social worker to start working on how we can sort that out ok, don't worry about that " I'm shocked, most of the hospitals I've been to don't even look at you unless you present your insurance card and your credit card. Here it is treatment first.
|My Picc Line with 3 lines|
|Calculating the ration of chemo and drip timing|
|oookk so this is what chemo feels like....|
My week of bad hospital food, lumbar punctures, chemo treatments, urine tests, 4 hourly monitoring, white blood cell shots are over, I get to go home and my brother surprises me with a visit from Malaysia! Thank goodness for family.
|I'm packed and ready to go home after a week in hospital!|
So one treatment down and I'm back home, what is in store when I get back? a friend who is working actively to promote her hair auction to raise money for me https://www.gofundme.com/down-the-rabbit-hole-with-daphne and what it really feels like to be a cancer patient. I'll be back